As I sat at my daughter’s bedside in the Neonatal Intensive Care Unit (NICU), I found myself wondering about her future. Like so many parents before me and after, I worried. Would she live? Would she walk? Would she talk? Would she be able to go to school? Would she grow up and have a normal life? Professionals, depending … Read More
A Preemie Registry That Does More
Crystal Ball Health is excited to be starting Preemie Crystal Ball, a preemie registry that will power the research to provide better outcomes data globally not only for researchers and industry across the board but also at NICU bedside, at home and into the adult years. Simply put, these former premature babies are asking questions about their early birth and … Read More
Premature Babies Grow Up & Vote
Wake up world: premature babies (aka preemies) and their families are a powerful vote in society, one that reaches easily across both sides of the political aisle. Life in and after the Neonatal Intensive Care Unit (NICU) is like being dropped off a cliff. I support the preemie community from pregnancy to NICU to home and into the adult years … Read More